1. On our trip up north, Full Speed showed us some genuine gratitude. We were all set to get him a soccer t-shirt while we attended the USMNT‘s Gold Cup Championship game at Soldier Field. He was so thankful to be attending the game, that he politely declined. He said being at the game was more than enough. Needless to say, he got a t-shirt anyway. I would have gotten him a car, too. I basically would have gotten him anything he wanted.
2. Even though T.Puzzle continues to insist on asserting his independence from me, when he won 1000 tickets at an arcade, he rushed to tell me all about it. I guess maybe he hasn’t outgrown his Mom after all. That’s a relief. Seriously.

3. We did lots of spectacular things this summer especially in Chicago. Watching the men’s team win the Gold Cup, eating on the 95th floor of the Hancock, riding the ferris wheel and a surrey bike at Navy Pier and carriage ride at night downtown just to name a few. Out of all these things, some of my favorite moments were the ones where conversations with my nieces and my boys would unexpectedly flow. Sure, we were experiencing unique and awesome events, but the true wonder was simply being together.


Too bad summer can’t last forever.
Hi, my name is Jennifer Hughes. I found your blog when I was researching ectopia lentis. Two of my sons also have this condition, they are younger than your boys and I wanted to share with you how reassuring reading about your boys was for me. My older boy is almost two and the younger is 4 months. We actually just saw the ectopia lentis in the baby recently. My older sons eye problem was thought to be a random occurrence after the extensive doctors appointments and sleepless nights. Now we have come to realize that both my husband and I must be carriers of the recessive gene for ectopia lentis. This has not been determined by a doctor as of yet but we are convinced because our baby is a twin and we have not noticed anything with his twin brothers eyes.
Anyway, reading your blog has given us a sense of security in that we are not alone. Our boys will be facing some future surgeries, and we are hopeful that things will unfold for us as they have with your family. I’ve enjoyed reading about your family, especially your very active boys who like ours were given the eyesight that they were meant to have and it is exactly what they will need to be who they are 🙂
So, thank you for writing your blog and if you wanted to offer us any insight or opinions about what you have learned about ectopia lentis from your experiences it would be greatly appreciated.
Sincerely,
Jen Hughes
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